Related Experiment Video
Updated: Jun 15, 2025

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
Narrative Diaries in Paediatric Palliative Care: A Scoping Review
Anna Marinetto1, Caterina Carraro1, Anna Santini1
1Palliative Care and Pain Service - Department of Women's and Children's Health, University of Padua, Padua, Italy.
Aim:
The aim of the study was to offer a comprehensive overview about literature on narrative diaries in paediatric palliative care.
Methods:
A scoping review was conducted in accordance with the methods of Arksey and O'Malley.
Results:
Among 83 studies, nine met the inclusion criteria. In the majority of publications (six research, 66%), the principal objective of employing diaries was to examine the disease experiences of children from the familial viewpoint. Three studies were focused on the feasibility of the diary to get information enhancing the understanding of real-life experiences of patients. The most common diarists are parents (five studies, 55%), followed by young patients (two studies, 22%) and close relatives (one study, 11%). The most common type of diary is the paper diary (seven studies, 77%). App-diary and audio recorders are also reported.
Conclusion:
Current literature has demonstrated a limited use of diaries in paediatric palliative care. They could represent a valid tool that can enable healthcare providers an enhanced understanding of the child and family's experiences and needs comprehensively.
Related Concept Videos
Methods of Documentation VI: Case Management Model
For example, a patient with a chronic...
Methods of Documentation III: PIE
Documentation in Long-Term and Home Healthcare Setting
Long-Term Care Facilities
Continuing Care
Methods of Documentation IV: Focus Charting
It typically involves three columns for recording information:
Guidelines for Nursing Documentation I
Factual:
The following points emphasize the significance of upholding accurate and unbiased documentation in healthcare.

