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Below-Knee Amputations: A Qualitative Social Media Analysis of Perceived Outcomes
Jacob Anderson1, Paul Gaschen, Neil Jain
1From the Department of Orthopedic Surgery, Texas Tech University Health Sciences Center (Mr. Anderson, Dr. Gaschen, Dr. Jain, Mrs. Cushman, Mr. Hernandez, and Dr. Mackay); the Community, Family, and Addiction Science, Texas Tech University, Lubbock, TX (Mr. Hernandez); and the Department of Health Sciences, College of Health Sciences, Rush University, Chicago, IL (Mr. Hernandez).
Introduction:
Below-knee amputations (BKAs) treat lower-limb conditions such as ischemia, peripheral artery disease, and trauma. This study uses social media to examine patient outcomes and perspectives post-BKA.
Methods:
Data from Facebook, Instagram, and X (formerly Twitter) from February 26, 2014, to February 26, 2024, were analyzed. Posts from the Facebook groups "Amputee Support Group" and "Below Knee Amputee," along with posts tagged with #belowkneeamputation and #belowkneeamputee on Instagram and X, were examined for demographics, perspective, and perceived outcomes.
Results:
Analysis of 571 Facebook posts, 520 Instagram posts, and 64 X posts revealed 67% positive outcomes, 20.1% neutral, and 12.9% negative. Instagram showed the most positive responses, often from patients resuming physical activities. Facebook was predominant with neutral posts seeking advice, while X displayed mostly positive feedback. Negative feedback on Facebook centered on phantom pain and reduced quality of life.
Discussion And Conclusion:
Most BKA patients reported positive postoperative outcomes. Facebook emerged as a vital platform for individuals to share their challenges and seek support, enabling them to join specialized support groups where they can connect with others facing similar issues and receive advice and encouragement. Negative outcomes, often related to persistent pain and dissatisfaction with life quality, underscore the need for surgeons to manage expectations and address physical and emotional recovery aspects of BKA.
