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Development of an Application for Self-Monitoring to Empower Patients With Rheumatoid Arthritis (MyRA)
Cheryl Roumen1, Laura M Hochstenbach1, Pim van den Dungen2
1C. Roumen, PhD, L.M. Hochstenbach, PhD, M.D. Spreeuwenberg, PhD, Department of Health Services Research, Faculty of Health Medicine and Life Sciences, Maastricht University, and Care and Public Health Research Institute, Maastricht University, Maastricht.
A new web-based tool, MyRA, was developed to help rheumatoid arthritis (RA) patients self-monitor their condition. This tool aims to improve patient empowerment through motivational features and interactive dialogues.
Area of Science:
- Digital health interventions
- Rheumatology
- Patient empowerment
Background:
- Rheumatoid arthritis (RA) management requires active patient participation.
- Self-monitoring tools can enhance patient engagement and empowerment.
- Existing tools may lack motivational elements crucial for long-term adherence.
Purpose of the Study:
- To develop a web-based self-monitoring tool for rheumatoid arthritis (RA) patients.
- To incorporate motivational elements to improve patient empowerment.
- To assess the usability of the developed tool.
Main Methods:
- Design-thinking approach with iterative, cocreative phases.
- Focus groups and cocreation sessions with patients and stakeholders.
- Usability assessment using heuristics evaluation and System Usability Scale (SUS).
Main Results:
- Identified key self-monitoring domains: physical function, quality of life, pain, fatigue, mental well-being, and social participation.
- Patients preferred empathetic avatar dialogues, goal setting, notes, sharing, and tips for motivation.
- The tool achieved a high mean SUS score of 84.4, indicating good to excellent usability.
- Areas for improvement include login, notifications, and avatar tone.
Conclusions:
- A web-based self-monitoring application (MyRA) was successfully developed.
- The tool features an avatar-led dialogue, graphical displays, diary function, and practical tips.
- Further research is necessary to validate the usability and effectiveness of MyRA in empowering RA patients.
