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Meaningful Engagement: Exploring Principles and Actions to Build Client and Caregiver Engagement Within a
Andrea Almas1, Rosemary Lysaght1, Susan Farrell2
1School of Rehabilitation Therapy, Queen's University, Kingston, Ontario, Canada.
Background:
Engagement of individuals with an intellectual disability and their caregivers in health care has been highlighted as an essential factor in developing services that better meet client needs; however, few studies have focused on the engagement of individuals with a dual diagnosis (intellectual disability co-occurring with a mental health illness and/or challenging behaviour) in health care.
Methods:
This qualitative participatory action study engaged clients and their caregivers in exploring principles and actions that can be applied to build active and meaningful engagement within a specialised community-based mental health service for adults with a dual diagnosis.
Results:
The four themes that emerged from the data-Collaboration, Communication, Empowering Environment, and Tailored Service-offered a way to conceptualise client and caregiver engagement.
Conclusion:
This study underscores the importance of building a culture of service delivery that values, encourages, and supports client and caregiver engagement. Practical strategies for increasing engagement are provided.
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