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Development of an Online Training Course for Government Employees to Support Families With a Child With Profound
Siméon T A Lahaije1, Jorien Luijkx1, Aly Waninge2,3
1Faculty of Behavioural and Social Sciences, Inclusive and Special Needs Education, University of Groningen, Groningen, the Netherlands.
Families with children with profound intellectual and multiple disabilities need support. A new product and training course were developed to enhance parental resilience and care capacity through improved communication with government employees.
Area of Science:
- Disability Studies
- Family Support Services
- Human-Computer Interaction
Background:
- Families with children with profound intellectual and multiple disabilities face complex, pervasive support needs.
- Effective support is crucial for enabling these families to lead positive and meaningful lives.
Purpose of the Study:
- To develop a needs-based product for families raising children with profound intellectual and multiple disabilities.
- To identify specific support preferences of these families.
Main Methods:
- Design Thinking methodology was employed to create a supportive product.
- Parental input was gathered through three distinct questionnaires.
Main Results:
- Parents expressed a preference for support focused on enhancing resilience and care capacity.
- Improved communication and mutual understanding with municipal government employees were identified as key needs.
- An online training course for government employees was developed based on these findings.
Conclusions:
- A product has been successfully developed to meet the specific needs and preferences of families with children with profound intellectual and multiple disabilities.
- The study offers valuable insights into the preferred support mechanisms for parents in this demographic.
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