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Ethical aspects and user preferences in applying machine learning to adjust eHealth addressing substance use: A
Marloes E Derksen1, Max van Beek2, Tamara de Bruijn3
1Arkin Mental Health Care and Amsterdam Institute for Addiction Research, Amsterdam, Netherlands; Amsterdam UMC, location University of Amsterdam, Department of Medical Informatics, eHealth Living & Learning Lab Amsterdam, Meibergdreef 9, Amsterdam, Netherlands; Amsterdam Public Health, Digital Health & Mental Health, Amsterdam, Netherlands.
Users find machine learning (ML) ethically acceptable in digital health interventions for substance use disorders. Preserving user autonomy and privacy are key ethical considerations for applying ML in these digital tools.
Area of Science:
- Digital Health
- Data Science
- Behavioral Health
Background:
- Digital health interventions are increasingly used for substance use disorders.
- Data science, including machine learning (ML), can enhance intervention effectiveness but raises ethical questions.
- User perspectives on ML in digital interventions for substance use and gambling disorder are underexplored.
Purpose of the Study:
- To explore ethical aspects and user preferences regarding supervised machine learning (ML) in digital interventions.
- To understand user acceptance and concerns about ML application in tailoring online substance use and gambling disorder treatments.
Main Methods:
- Mixed-methods approach combining qualitative focus groups (n=10) and a quantitative online questionnaire (n=157).
- Participants were recruited from an evidence-based online intervention (Jellinek Digital Self-help).
- Data analysis guided by biomedical ethics principles.
Main Results:
- Users found ML application ethically acceptable, anticipating benefits for intervention and well-being.
- Preserving user autonomy emerged as a critical factor in the acceptance of ML-driven adjustments.
- Trust in the intervention provider's integrity was high; initial qualitative concerns about data security and control were not quantitatively confirmed.
Conclusions:
- Digital intervention users exhibit limited ethical concerns regarding ML, prioritizing autonomy and privacy.
- Supervised ML can be ethically applied in digital interventions, provided user autonomy and privacy are maintained.
- User trust and perceived benefits outweigh potential ethical risks when implementing ML in digital health for substance use disorders.
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