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User Experience and Vendor Lock-in with Current Diabetes Information System
Pietro Randine1, Eirik Årsand1
1UiT The Arctic University of Norway, Tromsø, Norway.
Studies in Health Technology and Informatics
|May 17, 2025
Summary
Integrating patient-generated health data (PGHD) for Type 1 Diabetes (T1D) management faces challenges. Limited data access and proprietary systems hinder seamless integration, impacting user experience with diabetes information systems.
Area of Science:
- Health Informatics
- Medical Device Integration
- Patient Data Management
Background:
- Patient-generated health data (PGHD) is vital for managing chronic conditions like Type 1 Diabetes (T1D).
- Current systems struggle to integrate diverse data from medical devices and wearables.
- A unified system is needed to enhance medical consultations with comprehensive patient data.
Purpose of the Study:
- To evaluate the patient user experience with the Dia-Continua information system for T1D.
- To identify challenges in obtaining and sharing PGHD within existing diabetes information systems.
- To discuss the implications of data fragmentation and lack of APIs on user experience and market competition.
Main Methods:
- Qualitative assessment of user experience with the Dia-Continua system.
- Analysis of challenges in data retrieval and sharing for experienced T1D patients.
- Review of the impact of proprietary interfaces and data formats on system integration.
Main Results:
- Highly experienced T1D users encountered significant difficulties in accessing and sharing their PGHD.
- The lack of standardized, publicly available APIs for medical data retrieval poses a major obstacle.
- Proprietary systems and data fragmentation negatively affect the usability of diabetes information systems.
Conclusions:
- Current diabetes information systems, including Dia-Continua, present usability issues due to data integration challenges.
- The absence of open APIs limits data interoperability and hinders a seamless user experience.
- Addressing data access and standardization is crucial for improving PGHD utilization in T1D management.
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