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Stakeholder Perspectives on the Meaningful Integration of Clinical Informatics Interventions Using Patient-Reported

David Russell1, Yashika Sharma2, Andrew P Ambrosy3

  • 1Department of Sociology, Appalachian State University, Boone, North Carolina, United States.

ACI Open
|June 9, 2025
PubMed
Summary

Patient-reported outcomes (PROs) are vital for tracking patient health. Implementing PROs in clinical informatics requires system integration, clinician support, and addressing patient technology literacy for wider adoption and maintenance.

Keywords:
RE-AIMequitypatient-reported outcomesqualitativesustainability

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Area of Science:

  • Health Informatics
  • Clinical Informatics
  • Patient-Reported Outcomes Research

Background:

  • Patient-reported outcomes (PROs) provide crucial insights into patient health status and disease progression from the patient's perspective.
  • PROs enable the identification of changes in health status directly reported by patients.

Purpose of the Study:

  • To apply the RE-AIM framework to understand clinical informatics interventions for PRO collection and use.
  • To identify factors influencing the reach, effectiveness, adoption, implementation, and maintenance of PROs in health systems.

Main Methods:

  • Interviews with 14 health informatics and clinical professionals.
  • Directed content analysis of stakeholder perspectives across RE-AIM domains.

Main Results:

  • PRO intervention reach varied based on institutional support and system integration.
  • Effectiveness was noted in patient conversations, but adoption faced barriers like licensing and low health literacy.
  • Implementation success depended on training, multilingual support, and clear data visualization.
  • Maintenance involved multimodal data collection and governance groups.

Conclusions:

  • Enhancing PRO intervention reach necessitates health system investment in electronic medical record integration and patient/clinician support.
  • Addressing language barriers and technology literacy is crucial for equitable PRO implementation.