FHIR-Based Information System for Type 1 Diabetes Consultations Based on Patient-Generated Health Data

This paper presents "Dia-Continua", a FHIR-based information system for Type 1 Diabetes consultations that utilizes patient-generated health data (PGHD). The system integrates information from medical devices like continuous glucose monitors, insulin pumps, and wearable devices like smartwatches and their associated cloud platforms to support a new model of diabetes consultation. It offers features such as summaries of insulin usage, insights into sleep and physical activity patterns, and the integration of health and fitness metrics into daily overviews. Testing the system with patients and conducting semi-structured interviews with clinicians highlighted the need for new metrics in medical consultations. From a technological perspective, we face the challenge of managing data from various vendors in an automated and standardized manner. The article examined the value of data and the system's relevance for both primary uses (e.g., medical applications) and secondary uses (e.g., research). Future work should focus on optimizing data storage and integrating the system with existing electronic health records while ensuring compliance with data regulations.