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[Advance care planning for children and adolescents with life-threatening or life-limiting illness]
Katrine Mose Sannerum1, Louise Engelbrecht Buur2, Camilla Lykke3
1Faculty of Health, Aarhus Universitet.
Abstract:
Children with life-threatening or life-limiting illnesses and their families face significant physical and emotional distress. Advance care planning (ACP) provides an opportunity to discuss and document end-of-life wishes. ACP benefits are clear for adults, but evidence is lacking for paediatric populations. Ten American published ACP studies show reduced negative emotions, improved decision-making, enhanced family communication, and a significant increase in completion of advance directives. However, adaptation to Danish health care and systematic implementation are needed to adhere to a Danish setting, as argued in this review.
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