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Care burden for people with palliative needs in rural Nepal: mixed method study
Adipti Pantha1, Namuna Shrestha2, Arati Poudel1
1International Nepal Fellowship (INF) Nepal, Pokhara, Nepal.
BMJ Supportive & Palliative Care
|January 13, 2026
Summary
Primary caregivers in rural Nepal, mostly women, face significant emotional, physical, and social burden. Limited formal support and knowledge highlight the need for integrated palliative care services.
Area of Science:
- Palliative Care Research
- Caregiver Burden Studies
- Rural Health
Background:
- Palliative care needs are increasing globally, particularly in rural settings.
- Understanding caregiver burden is crucial for effective support systems.
Purpose of the Study:
- To assess the burden experienced by primary caregivers of individuals with palliative care needs in rural Nepal.
- To identify available support systems for these caregivers.
Main Methods:
- An explanatory sequential mixed-method design combining surveys and interviews.
- Quantitative data from a modified Caregivers' Burden Scale.
- Qualitative thematic analysis of semi-structured interviews.
Main Results:
- 83% of caregivers reported high levels of emotional, physical, and social burden.
- Predominantly women (81%), often daughters-in-law or wives, provided care.
- Limited support from health professionals (38%) and poor clinical knowledge were noted.
Conclusions:
- Rural Nepali caregivers, mainly women, experience substantial multidimensional burden with inadequate formal support.
- Palliative care services must address caregiver needs, leveraging community resources.
- Empowering caregivers within primary care models is recommended.
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