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Using Non-Standard Research Methods to Explore the Perspectives of People With Intellectual Disabilities on Sensitive
Irene Tuffrey-Wijne1, Andrea Bruun1, Rebecca Anderson-Kittow1
1Kingston University London, London, UK.
Summary
Innovative data collection methods, like games, can make sensitive research accessible for people with intellectual disabilities. Rigorous analysis ensures validity and reliability in these creative approaches.
Area of Science:
- Disability Studies
- Qualitative Research Methods
- Healthcare Research
Background:
- Research on sensitive topics often excludes individuals with intellectual disabilities due to methodological challenges.
- Innovative, non-standard data collection methods are increasingly used, but analysis, validity, and reliability remain underexplored.
- Addressing the need for accessible research methodologies for vulnerable populations.
Purpose of the Study:
- To describe the development and implementation of creative data collection methods for research with people with intellectual disabilities.
- To discuss the data analysis process for qualitative studies involving participants with intellectual disabilities.
- To provide insights into ensuring validity and reliability in non-standard research approaches.
Main Methods:
- Focus group study on end-of-life care planning with people with intellectual disabilities.
- Development and application of novel data collection tools presented as 'games'.
- Data analysis using the Framework method within an interpretivist phenomenological paradigm, including collaborative team discussions.
Main Results:
- Creative, game-based data collection tools effectively elicited participant perspectives.
- The Framework method, combined with interpretivist phenomenology and team collaboration, facilitated data analysis.
- Inclusion of researchers and advisors with intellectual disabilities in the analysis process enhanced understanding.
Conclusions:
- Creative activities can serve as valid data collection tools when aligned with research paradigms and co-developed with participants.
- A clear rationale and rigorous, transparent analytical processes are crucial for the validity of innovative methods.
- Co-development and testing with people with intellectual disabilities are essential for ensuring the appropriateness and reliability of data collection tools.
Keywords:
data analysisdeath and dyinginclusive researchintellectual disabilityinterpretivist phenomenologyqualitative researchMore Related Videos
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