Related Experiment Video
Updated: Jun 23, 2026

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
From Methodological Challenges to Recommendations for Future Practice: Lessons From an Ethnographic Study With People
Karina Nissen Frøkjær1,2,3, Siri Lygum Voldbjerg1,2,3, Tine Fristrup4
1Department of Clinical Medicine, Aalborg University, Aalborg, Denmark.
Background:
Methodological, social and ethical challenges embedded in qualitative research with people with intellectual disabilities call for innovation and approaches that amplify their voices. This paper aims to offer methodological recommendations based on a critical reflection and discussion of the challenges involved in conducting qualitative and inclusive research with people with intellectual disabilities. It focuses on challenges related to inclusion, obtaining consent, conducting participant observations and individual interviews and involvement through an expert panel including people with intellectual disabilities.
Method:
Inclusive research and critical disability studies inspired the analytical lens applied in the discussion.
Results:
Researchers are advised to adapt and tailor research methods. This may involve adopting an inclusive approach, establishing prior familiarity, applying multimodal strategies or alternative methods to verbally dominated approaches, such as the sensory-dialogical approach.
Conclusion:
This paper contributes to existing research methodologies; however, substantial challenges remain and future methodological developments are needed.
Related Concept Videos
Intellectual Disability
Learning Disabilities
Dyslexia
Dyslexia is a...
Case Studies
Naturalistic Observations
Ethics in Research
Impact of Social Context on Individuals
