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Published on: May 10, 2022
From Awareness to Action: Developing A Cystic Fibrosis-Tailored Screening for Disordered Eating Behaviors.
Jacob McCoy1, Megan Behrman2, Jade Robichaud2
1Albany Medical College, Albany, New York, United State of America.
Healthcare professionals find managing disordered eating behaviors (DEB) in people with cystic fibrosis (CF) challenging due to limited resources and a lack of tailored screening tools. Developing a validated CF-specific screening tool is crucial for improving care.
Area of Science:
- Medical Research
- Nutrition Science
- Psychology
Background:
- Cystic Fibrosis (CF) is a chronic, diet-related condition.
- Individuals with CF have an increased risk of developing disordered eating behaviors (DEB) and eating disorders (ED).
- Unique DEB may manifest in people with CF (PWCF).
Purpose of the Study:
- To explore healthcare professionals' (HCP) experiences with DEB in PWCF.
- To understand the challenges HCP face in managing DEB within the CF population.
- To identify needs for improved DEB management strategies in CF care.
Main Methods:
- Qualitative interviews were conducted with 12 experienced HCP in CF care.
- Interviews explored eating behaviors, the impact of DEB, and management strategies for PWCF.
- Thematic analysis was used to interpret interview data.
Main Results:
- New weight-related challenges and stigma emerged with advanced CF therapies.
- HCP reported limited evidence-based guidance and resources for managing DEB in PWCF.
- Despite experience, HCP felt ill-equipped to address, manage, and treat DEB in PWCF.
Conclusions:
- A validated, CF-tailored screening tool for DEB in PWCF is currently lacking in the US.
- HCP express a need for better resources and training to manage DEB in the CF population.
- Developing a specific screening tool is critical for early identification and improved management of DEB in PWCF.
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