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Published on: June 6, 2020
Co-Creating Health Promotion Training With People With Intellectual Disabilities: A Participatory Action Research
Valentine Perrelet1, Emma Mignone-Ermacora1, Loreene Casteyde2
1University of Applied Sciences and Arts Western Switzerland, Faculty of Social Work (HETSL | HES-SO), Delémont, Switzerland.
Background:
People with intellectual disabilities face persistent health inequalities and limited access to health promotion services. Their perspectives are rarely included in service design.
Methods:
This participatory action research (Jan 2024-Apr 2025) involved co-researcher and co-trainers in the development of a new health promotion training for professionals working in institutional contexts. An Inclusive and Participatory Educational Board guided four iterative steps: identifying needs, co-designing content, co-teaching training and evaluating outcomes.
Results:
Findings revealed that people with intellectual disabilities prioritize holistic well-being, autonomy and personalized support, while professionals tend to focus on conventional health domains. Both groups highlighted needs spanning individual, social and structural levels. The co-creation process fostered inclusion and mutual learning but encountered logistical, communication and institutional challenges.
Conclusions:
Co-creation enhances the relevance, ethical grounding and equity of training in health promotion and prevention. Future efforts must improve inclusive communication, institutional coordination and formal recognition of service users' contributions.
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