Type 2 diabetes as a familial illness: Findings from a focus group study

Type 2 diabetes mellitus (T2DM) is a prevalent illness with high societal and personal costs. Whereas there is some systemic research, there are still many pieces yet unknown about T2DM and families. The purpose of the current study is to understand the transgenerational health experiences related to T2DM for both patients and caregivers.

Focus groups were the primary methodology. Interviews were recorded, transcribed, and coded for themes. Participants were recruited via community fliers and e-mail listservs. The primary inclusion criterion was having a (a) family history of T2DM or (b) personal history of T2DM. Participants also needed to be at least 18 years old and be able to read and speak English.

In 4 focus groups, 32 people were interviewed. The sample was entirely rural yet reasonably diverse. Five dominant themes emerged from the data: physical health comorbidities, T2DM is a lifestyle illness affecting the whole family, mental health stresses and comorbidities, personal and family relationship with T2DM, and sharing knowledge.

Participants indicated that their families had been influenced by T2DM and that the illness had both physical and mental health comorbidities-both of which caused considerable stressors. Participants also reported that they valued the sharing of knowledge related to T2DM with each other and people in their lives. Limitations to the study include lack of generalizability because of small sample size and the majority of recruitment being done via technology. Future research should include larger, more diverse samples and quantitative data collection. Implications are also discussed. (PsycINFO Database Record (c) 2019 APA, all rights reserved).