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Monitoring and supporting development in children on home invasive mechanical ventilation
Ezgi Ozalp Akin1, Bahar Bingoler Pekcici1
1Developmental-Behavioral Pediatrics Division, Department of Pediatrics, Ankara University School of Medicine, Ankara, Turkey.
Supporting the development of children on home invasive mechanical ventilation requires a holistic, strengths-based approach. This ensures children reach their full potential across all developmental domains, integrating family-centered care and transdisciplinary follow-up.
Area of Science:
- Pediatric developmental science
- Rehabilitation medicine
- Family-centered care
Background:
- Children on home invasive mechanical ventilation (HIMV) have unique needs beyond survival and morbidity.
- Optimal developmental potential is a right for every child on HIMV.
- Early childhood is critical for brain development and plasticity.
Purpose of the Study:
- To outline a framework for monitoring and supporting child development in children on HIMV.
- To emphasize holistic developmental support during the critical early childhood period.
Main Methods:
- Utilizing key theory-based frameworks: bioecological theory, family-centered care, ICF framework.
- Implementing a monitoring approach and child-friendly healthcare.
- Adopting a transdisciplinary care model.
Main Results:
- Monitoring and support aim to maximize children's developmental potential.
- Key aspects include tracking development, identifying strengths/vulnerabilities, and addressing risk factors.
- Support is provided to both the child and the family, utilizing specialized services as needed.
Conclusions:
- A standard, urgent, and holistic approach to development is crucial for children on HIMV.
- Focus areas include cognitive, language, motor, play, and self-help domains.
- Emphasizes strengths-based, family-centered care, functionality, participation, stigma avoidance, and transdisciplinary follow-up.
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